27/6/11 – Not a great blood result…

Well I had my usual 3 weekly follow up today which looks at my blood tests results to see how chemo is going…

Unfortunately, as i shared the other day, i’ve been having some pains which were concerning me a bit. Today I found out my bloods are indicating that the last round of chemo did not work as well as the previous. My liver function has dropped after it was doing so much better and my tumor marker has gone up again instead of plateuing or dropping dropping further which is what we were obviously all hoping for. This isnt great news but we are not panicing just yet. They dropped my dose a little last time due to some side effects I was having so they are thinking this is possibly why my stats since then are not as good – even though they promised me at the time that it wasn’t going to be any less effective. So, Im now back on the increased dose as of this Saturday which Im ok with I guess but I was enjoying having about 15% more energy, not so sore feet and hands, and feeling a bit more capable towards the end of the second week rather than a strung out, irritable psycho at times. So we shall see how it goes this time around.

After I get back from Queenstown I will be having CT scan (Mon 11th) to see how my tumors are looking, literally, rather than just going by a blood count which is not that accurate. They will make a call from that as to whether they will continue me on the Capesidabine or whether we try another drug. Joy.

So fingers, toes etc etc are crossed as the goal is obviously to stay on this drug as long as possible and keep things steady and manageable rather than having to try something else. The sooner we have to try other drugs, the sooner we run out of other drugs to try. Would like to stay on this for years please!!!! Are you listening God!!!!!?????? A cure would be nice too =)

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