Time to get my ‘things’ in order…
Yes its 245am Saturday 4th Dec and Im awake but thats the norm lately. Insomnia is a b*tch. Sadly I have more bad news to share. This afternoon I finally found the courage to call my oncologist and get his views on my CT Scan results after putting it of for 4 days. To get straight to the point, he says I have anything from 2-8weeks!! Average being 6-8weeks for someone at my point of things. Basically there is not much left of my liver functioning at all (they didnt give me any tumor measurements this time, its just one big blob throughout...
read more8 MEN SWIM ACROSS THE HARBOUR….FOR ME
NORTH HARBOUR SENIOR MENS WATERPOLO TEAM – OCEAN SWIM FUNDRAISER Jonny Clarke wrote to me and asked me if he it would be ok if he, along with his waterpolo team, swam the 2.9km Auckland State Harbour Crossing to help raise funds for my treatments. Of course I was extremely honored and humbled by this amazing gesture and said yes. All proceeds from sponsoring their swim will be going directly to me to help pay for my GcMAF. Jonny and the team swim the crossing on November 13th. Thank you guys! You are amazing. A special thank you also...
read moreDay1, Week 1 GcMAF 14/8/11
Today I received the first injection of my GcMAF treatment – my new hope. Michael (from St Benedicts Health) said I might feel tired after a couple of hours – that will be my immune system kicking in. (I get to administer it myself, at home. Fan-bloody-tastic!) I don’t think I did feel suddenly tired but then again I have a bad cold and was feeling really tired anyway. He also said some don’t have their immune system really kick in til week 4 (shot 4) so who knows, maybe the ‘kick start’ is yet to come....
read moreTime to stop chemo…11/8/11
Firstly, forgive me if any of this doesn’t make sense, im a little bit doped up on morphine. I made a decision a few days ago to discontinue my chemo treatment. It doesnt seem to be doing me any good. My results of late have shown new tumors so its obviously not working. Today at the hospital they too said it was time to stop the Capesidabine (before I got the chance to tell them Ive already decided to stop). They then suggested a new type of chemo we could try but I politely declined and told them Id already decided to stop...
read moreFirst tears for pain in a long time…11/8/11
Well I spent half the day in the Auckland Hospital today as a result of severe abdominal pains. I couldnt move. I couldnt lie down, bend over, stretch out, pick up Jackson, breath deeply, cough….it’s pretty bad. So after 48hrs of it not subsiding and eventually seeing my lips turn blue, I gave in and went straight to Acute Oncology. Before I left there were tears as I described my pain to the doctors on the phone. Poor Jackson couldnt stop saying “are you ok mummy, are you sad, are you ok. Cuddle? Kiss??” So...
read moreA mixed bag from the CT Scan
I had a CT Scan a few weeks ago now, following the not so good blood result. It was as we had feared. Things have progressed. The weird thing is my largest tumour in my liver has shrunk from 4.5cm to around 2.5cm. But the other 5 tumours in the liver have grown at least another centimetre. And they think a new one is showing also. Plus there is a new spot on my T7 in my spine and they think a spot on my right hip. Not good. But strangely my liver function result getting better. Go figure. I guess it is because the largest tumour that was...
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